Parents of children with spinal muscular atrophy (SMA) are expressing concerns that Wales is lagging behind England and Scotland in implementing routine newborn screening for the condition. Despite successful campaigns, including efforts by Jesy Nelson, the Welsh government has not adopted the screening due to guidance from the UK National Screening Committee.
Families affected by SMA highlight the importance of early diagnosis for better treatment outcomes, emphasizing that timely intervention can significantly improve quality of life for children with the condition.